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Also known as: FOR DRAVET
Julian Chang Family Foundation For Dravet is a private corporation based in SAN FRANCISCO, CA. The foundation received its IRS ruling in 2019. It holds total assets of $28K. Annual income is reported at $25K. ADMINISTRATIVE OPERATION COSTS FOR PROGRAM TO PROVIDE THE PUBLIC WITH EDUCATIONAL RESOURCES IN THE FORM OF INFORMATION ONLINE RELATED TO DRAVET SYNDROME THAT MAY BE OF USE TO INDIVIDUAL FAMILIES WHO ARE IMPACTED BY THE CONDITION AS WELL AS INDIVIDUAL RESEARCHERS WHO ARE STUDYING THE CONDITION. According to available records, Julian Chang Family Foundation For Dravet has made 4 grants totaling $258K, with a median grant of $63K. Annual giving has grown from $50K in 2020 to $158K in 2022. Individual grants have ranged from $50K to $83K, with an average award of $64K. Grant recipients are concentrated in New Jersey. Contributions to this foundation are tax-deductible.
ADMINISTRATIVE OPERATION COSTS FOR PROGRAM TO PROVIDE THE PUBLIC WITH EDUCATIONAL RESOURCES IN THE FORM OF INFORMATION ONLINE RELATED TO DRAVET SYNDROME THAT MAY BE OF USE TO INDIVIDUAL FAMILIES WHO ARE IMPACTED BY THE CONDITION AS WELL AS INDIVIDUAL RESEARCHERS WHO ARE STUDYING THE CONDITION.
Expenses: $6K
CO-SPONSORSHIP OF TWO RESEARCH PROJECTS IN CONJUNCTION WITH DRAVET SYNDROME FOUNDATION. PROJECT 1: TWO-YEAR RESEARCH GRANT ON KETOGENIC DIET MODULATED BRAIN ENERGY METABOLISM IN DRAVET SYNDROME- A MOUSE MODEL STUDY OF METABOLISM AND WHY KETOGENIC DIET WORKS, LEADING TO POTENTIAL MEDICATION OPTIONS RATHER THAN RESTRICTIVE DIET FOR KIDS. DMI BRAIN IMAGING OF MICE AND THEN KIDS, SO A NON-INVASIVE PROCEDURE. PROJECT 2: OPTIMIZING THE REGINAL ADMINISTRATION OF SCN8A-TARGETING RNAI THERAPY- A POST-DOCTORAL RESEARCH PROJECT TO STUDY THE SCN8A GENE, RNA BASED, AAV VECTORS FOR ONE TREATMENT.
Expenses: $50K
ADMINISTRATIVE OPERATION COSTS FOR PROGRAM TO PROVIDE THE PUBLIC WITH EDUCATIONAL RESOURCES IN THE FORM OF INFORMATION ONLINE RELATED TO DRAVET SYNDROME THAT MAY BE OF USE TO INDIVIDUAL FAMILIES WHO ARE IMPACTED BY THE CONDITION AS WELL AS INDIVIDUAL RESEARCHERS WHO ARE STUDYING THE CONDITION. Based on available records, the foundation has funded 4 grants. Its grantmaking reaches organizations primarily in NJ.
Julian Chang Family Foundation For Dravet has distributed a total of $258K across 4 grants. The median grant size is $63K, with an average of $64K. Individual grants have ranged from $50K to $83K.
Julian Chang Family Foundation For Dravet typically selects its grantees rather than accepting unsolicited proposals. The application deadline is TO BE DETERMINED BY THE BOARD OF DIRECTORS.. TO BE DETERMINED BY THE BOARD OF DIRECTORS.
Julian Chang Family Foundation For Dravet is headquartered in SAN FRANCISCO, CA.
| Name | Title | Compensation | Benefits | Total |
|---|---|---|---|---|
| Daniel Chang | PRESIDENT | $0 | $0 | $0 |
| Deborah Chang | SECRETARY | $0 | $0 | $0 |
| Zac Maufe | TREASURER | $0 | $0 | $0 |
| Joseph Sullivan | DIRECTOR | $0 | $0 | $0 |
Total Giving
$23K
Total Assets
$265K
Fair Market Value
$265K
Net Worth
$261K
Grants Paid
$0
Contributions
$250K
Net Investment Income
$0
Distribution Amount
$0
Total Grants
4
Total Giving
$258K
Average Grant
$64K
Median Grant
$63K
Unique Recipients
1
Most Common Grant
$50K
of 2022 grantees were first-time recipients
| Recipient | Location | Amount | Year |
|---|---|---|---|
| Dravet Syndrome FoundationRESEARCH GRANT | Cherry Hill, NJ | $83K | 2022 |
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