//
A transition award designed to support exceptional early career scientists during the final years of their mentored postdoctoral research position through their transition to an independent tenure-track faculty position. The program provides financial support, mentorship, and professional development to investigators pursuing research relevant to single ventricle heart disease.
Additional Ventures Foundation is a private corporation based in SAN FRANCISCO, CA. The foundation received its IRS ruling in 2018. It holds total assets of $220.3M. Annual income is reported at $54.6M. PROJECT SINGULAR - THE FOUNDATION IS INVESTING IN BUILDING A GENOMICS REGISTRY FOR SINGLE VENTRICLE PATIENTS AND THEIR FAMILIES IN THE UNITED STATES AND CANADA IN ORDER TO UNDERSTAND THE GENETIC CAUSES OF SINGLE VENTRICLE HEART DISEASE AS WELL AS THE GENETIC CONTRIBUTORS TO THE MANY ASSOCIATED CO-MORBIDITIES. AT LEAST 5,000 SINGLE VENTRICLE PATIENTS AND THEIR IMMEDIATE FAMILY MEMBERS (PARENTS AND SIBLINGS) WILL BE RECRUITED AND CONSENTED VIRTUALLY WITH DNA SEQUENCING KITS MAILED TO THEIR HOMES TO DECREASE THE BURDEN OF PARTICIPATION. WHOLE GENOME SEQUENCING WILL BE CONDUCTED WITH PARTICIPANTS' SAMPLES, AND THE DEIDENTIFIED DATASET WILL BE MADE AVAILABLE FOR FREE TO ALL QUALIFIED RESEARCHERS WORLDWIDE, FUELING NOT JUST ONE RESEARCH STUDY BUT MANY. IN 2021, EFFORTS INCLUDED BUILDING THE REGISTRY, AS WELL AS DEVELOPING THE PATIENT AND FAMILY RECRUITMENT MESSAGING AND MATERIALS. According to available records, Additional Ventures Foundation has made 105 grants totaling $20.2M, with a median grant of $204K. Annual giving has grown from $8.3M in 2021 to $11.9M in 2022. Individual grants have ranged from $41K to $1.2M, with an average award of $192K. The foundation has supported 40 unique organizations. The foundation primarily supports organizations in California, Massachusetts, Ohio, which account for 47% of all grants. Grantmaking reaches organizations across 18 states. Contributions to this foundation are tax-deductible.
SINGLE VENTRICLE SOURCE - ADDITIONAL VENTURES IS BUILDING THE WORLD'S LARGEST GENOMICS DATASET OF SINGLE VENTRICLE PATIENTS AND THEIR IMMEDIATE FAMILY MEMBERS TO FUEL RESEARCH TO DISCOVER THE CAUSE OF SINGLE VENTRICLE HEART DISEASE AS WELL AS THE GENETIC CONTRIBUTORS TO RELATED CO-MORBIDITIES AND COMPLICATIONS. THE DEIDENTIFIED DATA WILL BE MADE AVAILABLE FREE OF CHARGE TO ALL QUALIFIED RESEARCHERS THROUGH A SIMPLE APPLICATION PROCESS. AT LEAST 5,000 SINGLE VENTRICLE PATIENTS AND THEIR FAMILY MEMBERS WILL BE RECRUITED TO CONTRIBUTE A DNA SAMPLE TO BE WHOLE GENOME SEQUENCED, AND PATIENTS WILL BE ASKED TO SHARE CARDIAC MEDICAL RECORDS. A WEBSITE PLATFORM WILL ENABLE VIRTUAL RECRUITMENT WITH DNA KITS MAILED TO PARTICIPANTS' HOMES. IN-CLINIC RECRUITMENT AT A SMALL NUMBER OF SITES WILL INCREASE ENROLLMENT NUMBERS. IN 2023, ADDITIONAL VENTURES HIRED IQVIA TO BUILD THE PLATFORM AND GENCOVE TO OVERSEE GENETIC SEQUENCING AND DATA STORAGE. THE STUDY WILL LAUNCH IN 2025.
Expenses: $758K
THE ECONOMIC BURDEN OF COMPLEX CONGENITAL HEART DISEASE IN THE US - RESEARCHERS APPLYING FOR FEDERAL FUNDING FOCUSED ON SINGLE VENTRICLE OFTEN SCORE LOW IN THE CATEGORY OF "DISEASE IMPACT" BECAUSE THERE IS NO CURRENT RESEARCH TO CITE TO DEMONSTRATE THAT THIS RARE DISEASE HAS AN OUTSIZED IMPACT. ADDITIONALLY, THERE IS A LACK OF AWARENESS AMONG THE GENERAL PUBLIC AND POLICY MAKERS ABOUT THE TREMENDOUS BURDEN OF COMPLEX CONGENITAL HEART DISEASES LIKE SINGLE VENTRICLE. IN 2023, ADDITIONAL VENTURES HIRED IQVIA TO CONDUCT RESEARCH AROUND THE ECONOMIC COST OF SIX SPECIFIC COMPLEX CONGENITAL HEART DISEASES, 3 OF WHICH ARE SINGLE VENTRICLE DEFECTS. THIS DATA WAS UTILIZED TO AUTHOR A REPORT TITLED, "THE ECONOMIC BURDEN OF COMPLEX CONGENITAL HEART DISEASE IN THE US AND PROVIDES AN OVERVIEW OF THE FINANCIAL BURDEN OF THESE DISEASES ON PATIENTS, FAMILIES, AND THE US ECONOMY.
Expenses: $357K
PROJECT SINGULAR - THE FOUNDATION IS INVESTING IN BUILDING A GENOMICS REGISTRY FOR SINGLE VENTRICLE PATIENTS AND THEIR FAMILIES IN THE UNITED STATES AND CANADA IN ORDER TO UNDERSTAND THE GENETIC CAUSES OF SINGLE VENTRICLE HEART DISEASE AS WELL AS THE GENETIC CONTRIBUTORS TO THE MANY ASSOCIATED CO-MORBIDITIES. AT LEAST 5,000 SINGLE VENTRICLE PATIENTS AND THEIR IMMEDIATE FAMILY MEMBERS (PARENTS AND SIBLINGS) WILL BE RECRUITED AND CONSENTED VIRTUALLY WITH DNA SEQUENCING KITS MAILED TO THEIR HOMES TO DECREASE THE BURDEN OF PARTICIPATION. WHOLE GENOME SEQUENCING WILL BE CONDUCTED WITH PARTICIPANTS' SAMPLES, AND THE DEIDENTIFIED DATASET WILL BE MADE AVAILABLE FOR FREE TO ALL QUALIFIED RESEARCHERS WORLDWIDE, FUELING NOT JUST ONE RESEARCH STUDY BUT MANY. IN 2021, EFFORTS INCLUDED BUILDING THE REGISTRY, AS WELL AS DEVELOPING THE PATIENT AND FAMILY RECRUITMENT MESSAGING AND MATERIALS. Based on available records, the foundation has funded 105 grants. Its grantmaking reaches organizations primarily in CA, MA, OH.
Additional Ventures Foundation has distributed a total of $20.2M across 105 grants. The median grant size is $204K, with an average of $192K. Individual grants have ranged from $41K to $1.2M.
Additional Ventures Foundation typically selects its grantees rather than accepting unsolicited proposals.
Additional Ventures Foundation is headquartered in SAN FRANCISCO, CA. While based in CA, the foundation distributes grants to organizations across 18 states.
| Name | Title | Compensation | Benefits | Total |
|---|---|---|---|---|
| Erin Hoffmann | PRESIDENT/CHAIRMAN/DIRECTOR | $0 | $0 | $0 |
| Tom Van Loben Sels | SECRETARY | $0 | $0 | $0 |
| Michael Schroepfer | CFO/DIRECTOR | $0 | $0 | $0 |
Total Giving
$26.2M
Total Assets
$206.1M
Fair Market Value
$206.1M
Net Worth
$187M
Grants Paid
$21.8M
Contributions
$12.2M
Net Investment Income
$38.4M
Distribution Amount
$9.3M
Total: $119.1M
Total Grants
105
Total Giving
$20.2M
Average Grant
$192K
Median Grant
$204K
Unique Recipients
40
Most Common Grant
$220K
of 2022 grantees were first-time recipients
| Recipient | Location | Amount | Year |
|---|---|---|---|
| Boston Children'S HospitalFORCE FUND | Boston, MA | $921K | 2022 |
| Nationwide Children'S Hospital IncCURES COLLABORATIVE | Columbus, OH | $426K | 2022 |
| Cincinnati Children'S Hospital Medical CenterADVANCED CARDIAC THERAPIES IMPROVING OUTCOMES NETWORK | Cincinnati, OH | $415K | 2022 |
| Stanford UniversityCURES COLLABORATIVE | Stanford, CA | $240K | 2022 |
| Enduring Hearts IncGRANTS FOR RESEARCH ON PEDIATRIC DONOR HEART AVAILABILITY AND QUALITY | Marietta, GA | $237K |
| 2018 | 990PF | View |
| 2017 | 990PF | View |
| 2022 |
| Washington University In St LouisCURES COLLABORATIVE | St Louis, MO | $231K | 2022 |
| Carnegie Mellon UniversityCURES COLLABORATIVE | Pittsburgh, PA | $225K | 2022 |
| Regents Of The University Of California At San DiegoSINGLE VENTRICLE RESEARCH FUND | La Jolla, CA | $220K | 2022 |
| Children'S Hospital Of Los AngelesSINGLE VENTRICLE RESEARCH FUND | Los Angeles, CA | $220K | 2022 |
| Cornell UniversitySINGLE VENTRICLE RESEARCH FUND | Ithaca, NY | $220K | 2022 |
| Duke UniversitySINGLE VENTRICLE RESEARCH FUND | Durham, NC | $220K | 2022 |
| Emory UniversitySINGLE VENTRICLE RESEARCH FUND | Atlanta, GA | $220K | 2022 |
| Harvard UniversitySINGLE VENTRICLE RESEARCH FUND | Cambridge, MA | $220K | 2022 |
| Icahn School Of Medicine At Mount SinaiSINGLE VENTRICLE RESEARCH FUND | New York, NY | $220K | 2022 |
| Imagine InstituteSINGLE VENTRICLE RESEARCH FUND | Paris | $220K | 2022 |
| Massachusetts General HospitalSINGLE VENTRICLE RESEARCH FUND | Boston, MA | $220K | 2022 |
| Massachusetts Institute Of TechnologySINGLE VENTRICLE RESEARCH FUND | Cambridge, MA | $220K | 2022 |
| Regents Of The University Of California San FranciscoSINGLE VENTRICLE RESEARCH FUND | San Francisco, CA | $220K | 2022 |
| Regents Of The University Of ColoradoSINGLE VENTRICLE RESEARCH FUND | Denver, CO | $220K | 2022 |
| Universita Degli Studi Di TorinoSINGLE VENTRICLE RESEARCH FUND | Torino | $220K | 2022 |
| University Of Texas Medical Branch At GalvestonSINGLE VENTRICLE RESEARCH FUND | Galveston, TX | $220K | 2022 |
| Yale UniversitySINGLE VENTRICLE RESEARCH FUND | New Haven, CT | $220K | 2022 |
| Baylor College Of MedicineSINGLE VENTRICLE RESEARCH FUND | Houston, TX | $220K | 2022 |
| Seattle Children'S HospitalSINGLE VENTRICLE RESEARCH FUND | Seattle, WA | $219K | 2022 |
| Ann & Robert H Lurie Children'S Hospital Of ChicagoSINGLE VENTRICLE RESEARCH FUND | Chicago, IL | $218K | 2022 |
| Indiana UniversitySINGLE VENTRICLE RESEARCH FUND | Bloomington, IN | $218K | 2022 |
| University Of OxfordSINGLE VENTRICLE RESEARCH FUND | Oxford | $203K | 2022 |
| The J David Gladstone InstitutesCATALYST TO INDEPENDENCE AWARD | San Francisco, CA | $200K | 2022 |
| Johns Hopkins UniversitySINGLE VENTRICLE RESEARCH FUND | Baltimore, MD | $180K | 2022 |
| Northwestern UniversityCATALYST TO INDEPENDENCE AWARD | Evanston, IL | $125K | 2022 |
| University Of Central Florida Research Foundation IncSINGLE VENTRICLE RESEARCH FUND | Orlando, FL | $101K | 2022 |
| Life Sciences Research FoundationPOSTDOCTORAL AWARD PROGRAM | Cockeysville, MD | $70K | 2022 |
| The Medical College Of Wisconsin IncTOOLS & TECHNOLOGY EXPANSION AWARD | Milwaukee, WI | $50K | 2022 |
| The Children'S Hospital Of PhiladelphiaTOOLS & TECHNOLOGY EXPANSION AWARD | Philadelphia, PA | $50K | 2022 |
| Aix-Marseille UniversityWEINSTEIN CARDIOVASCULAR AND REGENERATION CONFERENCE | Marseille | $46K | 2022 |
| J David Gladstone InstitutesINNOVATION AWARD | San Francisco, CA | $1.2M | 2021 |
| University Of PittsburghTOOLS & TECHNOLOGY EXPANSION AWARD | Pittsburgh, PA | $50K | 2021 |
| New York UniversityTOOLS & TECHNOLOGY EXPANSION AWARD | New York, NY | $50K | 2021 |
| Clemson UniversityTOOLS & TECHNOLOGY EXPANSION AWARD | Clemson, SC | $50K | 2021 |
| Heart Research InstituteTOOLS & TECHNOLOGY EXPANSION AWARD | Newtown | $48K | 2021 |
© 2026 Granted AI