//
Spinal Muscular Atrophy Foundation is a private corporation based in NEW YORK, NY. The foundation received its IRS ruling in 2003. The principal officer is % Sma Foundation. It holds total assets of $50.2M. Annual income is reported at $19.5M. The foundation operates in the area of education. According to available records, Spinal Muscular Atrophy Foundation has made 6 grants totaling $1.9M, with a median grant of $246K. Annual giving has grown from $598K in 2021 to $1.3M in 2022. Individual grants have ranged from $53K to $654K, with an average award of $318K. The foundation has supported 4 unique organizations. Grants have been distributed to organizations in California and New York and Massachusetts. Contributions to this foundation are tax-deductible.
Spinal Muscular Atrophy Foundation primarily funds organizations in the area of education. Based on available records, the foundation has funded 6 grants. Its grantmaking reaches organizations primarily in CA, NY, MA.
Spinal Muscular Atrophy Foundation has distributed a total of $1.9M across 6 grants. The median grant size is $246K, with an average of $318K. Individual grants have ranged from $53K to $654K.
Spinal Muscular Atrophy Foundation typically selects its grantees rather than accepting unsolicited proposals.
Spinal Muscular Atrophy Foundation is headquartered in NEW YORK, NY. While based in NY, the foundation distributes grants to organizations across 3 states.
| Name | Title | Compensation | Benefits | Total |
|---|---|---|---|---|
| Story Landis | DIRECTOR | $0 | $0 | $0 |
| Gerald Fischbach Md | DIRECTOR | $0 | $0 | $0 |
| Jonathan Leff | DIRECTOR | $0 | $0 | $0 |
| Douglas Cole Md | DIRECTOR | $0 | $0 | $0 |
| Juli Oh Esq | TREASURER | $0 | $0 | $0 |
Total Giving
$3.6M
Total Assets
$33.7M
Fair Market Value
$33.7M
Net Worth
$31.5M
Grants Paid
$1.9M
Contributions
$52K
Net Investment Income
$12.5M
Distribution Amount
$1.2M
Total Grants
6
Total Giving
$1.9M
Average Grant
$318K
Median Grant
$246K
Unique Recipients
4
Most Common Grant
$53K
of 2022 grantees were first-time recipients
| Recipient | Location | Amount | Year |
|---|---|---|---|
| Columbia UniversityTO SUPPORT PNCR RESEARCH | New York, NY | $79K | 2021 |
| Stanford UniversityMODAILTY-AGNOSTIC DRUG PROTOTYPING RESEARCH PROJECTS | Palo Alto, CA | $654K | 2022 |
| Children'S Hospital Of BostonTO SUPPORT PNCR RESEARCH | Boston, MA | $53K | 2021 |
| University Of RochesterTO SUPPORT PNCR RESEARCH | Rochester, NY | $53K | 2021 |
Other foundations that have funded Spinal Muscular Atrophy Foundation.
| Funder | Amount | Year | Purpose |
|---|---|---|---|
| John And Jennifer Eckerson Family Foundation | $1K | 2022 | General Unrestricted |
| Jeff And Susie Seitz Charitable Foundation | $1K | 2021 | GENERAL FUND |
| Andrew Knight |
| DIRECTOR |
| $0 |
| $0 |
| $0 |
| Simon Prisk Esq | DIRECTOR | $0 | $0 | $0 |
| Loren Eng | PRESIDENT | $0 | $0 | $0 |
| Helen Meates | DIRECTOR | $0 | $0 | $0 |
| Dinakar Singh | BOARD CHAIRMAN | $0 | $0 | $0 |
| Stephen Mikita Esq | DIRECTOR | $0 | $0 | $0 |
| 2018 | 990PF | View |
| 2017 | 990PF | View |
| 2016 | 990PF | View |
© 2026 Granted AI