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Deadline is April 28, 2026 at 3:00 PM CT, confirmed directly on the application page.
The #RAREis Scholarship Fund is a grant from the EveryLife Foundation for Rare Diseases, administered by Scholarship America, that funds higher education for adults living with rare diseases. Supported by Amgen, the program awards one-time $5,000 scholarships to up to 58 recipients per cycle for the Fall 2026 semester.
Applicants must be U.S. residents aged 17 or older with a physician-verified rare disease diagnosis, enrolled or planning to enroll part-time or full-time at an accredited two- or four-year college, university, or vocational school. The deadline is April 28, 2026.
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#RAREis Scholarship Fund - Scholarship America The EveryLife Foundation for Rare Diseases has established the #RAREis Scholarship Fund to help adults with rare diseases in a variety of educational pursuits, regardless of treatment status.
Applications Open - Deadline April 28, 2026 3:00 PM CT The EveryLife Foundation for Rare Diseases has established the #RAREis Scholarship Fund to help adults with rare diseases in a variety of educational pursuits, regardless of treatment status. Thanks to the support of Amgen, one-time awards of $5,000 each will be granted up to 58 recipients for the Fall 2026 semester.
The program is administered by Scholarship America ® , the nation’s largest designer and manager of scholarships and other education support programs for corporations, foundations, associations, and individuals. Eligibility for individual programs is determined at the sole discretion of the sponsor and eligible applications are reviewed by Scholarship America’s evaluation team.
Applicants to the #RAREis Scholarship Fund must be: U.S. residents who have been diagnosed* by a physician as having any form of rare disease regardless of treatment status. Applicants will be asked to provide a Diagnosis Verification Form provided by a physician verifying diagnosis.
Currently enrolled or planning to enroll full-time or part-time** in undergraduate or graduate study at an accredited two- or four-year college, university or vocational-technical/trade school for the Fall 2026 semester. 17 years old or older (no upper age limit, veterans and non-traditional students are encouraged.) *Undiagnosed applicants may apply with completed Diagnosis Verification Form by a physician.
**There is no minimum amount of credit hours to be part-time (example, one class is considered part time). If selected as a recipient, the student will receive a $5,000 award. Up to (58) awards will be granted.
Awards are not renewable, but students may reapply to the program each year they meet eligibility requirements. Recipients can receive the award no more than four times. Awards are for accredited courses; including vocational-technical/trade school, undergraduate, graduate study and single classes verified under an accredited program.
Applicants will be notified in June. Not all applicants to the program will be selected as recipients. Students may reapply to the program each year they meet eligibility requirements.
Notifications are sent via email. When setting up your account, avoid using a school or work email. Instead, use an active, personal email address that you will continue to have access to.
Scholarship America processes scholarship payments on behalf of The EveryLife Foundation for Rare Diseases. Payments are made payable to the institution in one installment in August and sent directly to the individual.
Scholarship recipients are selected on the basis of: Demonstrated leadership and participation in school and community activities *Essay topic: What unseen responsibilities or barriers related to rare disease have shaped your education or career path? Financial need will be considered.
As part of your application, you must upload the following: Your most recent transcript of grades (high school, GED, college, etc.) Grade reports are not accepted. Unofficial or online transcripts must display: Credit hours for each course and term in which each course was taken. A Diagnosis Verification Form | Spanish Diagnosis Verification Form must be completed by a physician and uploaded to your application.
No exceptions . NOTE: If you are providing SAT or ACT test scores, and those scores are not listed on your high school transcript, you will need to upload a copy of your test score report(s) separately. If you are uploading a college transcript, those scores are not required.
Your application is not complete unless all required documents are submitted electronically. If you have any issues acquiring old transcripts, please contact support at rareis@scholarshipamerica. org .
Scholarship America offers a safe and trusted resource to help you find scholarships and answer important questions along the way.
Key questions and narrative sections extracted from the solicitation.
What unseen responsibilities or barriers related to rare disease have shaped your education or career path?
Scoring criteria used to review proposals for this grant.
Based on current listing details, eligibility includes: U.S. residents aged 17+ with a physician-diagnosed rare disease who are enrolled or planning to enroll full-time or part-time in undergraduate or graduate study at an accredited institution for Fall 2026. Applicants should confirm final requirements in the official notice before submission.
Current published award information indicates $5,000 per recipient Always verify allowable costs, matching requirements, and funding caps directly in the sponsor documentation.
The current target date is April 28, 2026. Build your timeline backwards from this date to cover registrations, approvals, attachments, and final submission checks.
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