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Find similar grantsSickle Cell Data Collection Program is sponsored by Centers for Disease Control and Prevention (CDC). This program supports the collection of data on sickle cell disease to assess its frequency, understand its impact on patient health, and improve care.
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Sickle Cell Data Collection (SCDC) Program | Sickle Cell Disease (SCD) | CDC Skip directly to site content Sickle Cell Data Collection (SCDC) Program The Centers for Disease Control and Prevention (CDC) is working to improve the lives of people with sickle cell disease (SCD), an inherited blood disorder.
Learn about CDC's Sickle Cell Data Collection (SCDC) program and find a suite of online resources that can help you or someone you know live healthy with SCD. Sickle cell disease (SCD) Sickle cell disease (SCD) is a blood disorder present at birth.
People with SCD have sickle-shaped red blood cells that stick together and block blood and oxygen from reaching all parts of the body, leading to health problems such as pain, anemia, infections, and stroke. Approximately 100,000 Americans are affected by SCD. CDC is committed to studying SCD to improve the health and care of people with this condition.
The Sickle Cell Data Collection (SCDC) program The SCDC program collects health information about people with SCD to assess the long-term trends in diagnosis, treatment, and healthcare access for people with SCD in the United States. The program, which has been ongoing since 2015, currently works with teams in the 16 shaded states on the map below to collect and link data from several sources.
As more resources become available, CDC plans to expand the program to include additional states. The program helps inform policy decisions and resource allocation within states to improve and extend the lives of people with SCD. The SCDC program currently works with teams in 16 states.
Learn more about the SCDC program: SCDC Surveillance Summary Other online SCD resources For people living with SCD and their caregivers The Steps to Better Health Toolkit was created by CDC in partnership with the American Society of Hematology (ASH). The toolkit includes information about common complications of SCD and steps to take for better health.
Stories of Sickle Cell is a video series , collection of short stories , and photoblog that aims to highlight the unique stories and diverse identities of those living with SCD. Stepping Up is a two-part video series for teenagers and young adults with SCD. The videos share the stories of two young adults with SCD, Kevin and Calvanay, and their transition to adult care.
They discuss how transitioning has affected them, and how they've overcome challenges. The Sickle Cell Trait Toolkit is a collection of fact sheets covering various health problems affecting people with sickle cell trait (SCT). People who have SCT inherit one sickle cell gene and one normal gene.
" Understanding the Complications of Sickle Cell Disease ," published in the American Journal of Nursing , provides an overview of major SCD-related health complications, as well as the nursing implications for each. CE credits are available. Provider Training Video Series : "Reducing Complications of Therapeutic Blood Transfusions in Sickle Cell Disease" is a four-part educational video series for healthcare providers.
Created in collaboration with CDC and the Georgia Health Policy Center, this training series is designed to provide information about and strategies for reducing transfusion complications in people with SCD. Tools and information about SCD, including free educational materials to give to patients. Help spread the word!
We encourage you to share our resources with friends, family, and colleagues to help people with SCD live healthy. Follow @CDC_NCBDDD on X (formerly Twitter) for future updates and to learn about new resources on SCD and other blood disorders. For more information about SCD, visit CDC's SCD website .
National Center on Birth Defects and Developmental Disabilities (NCBDDD) Sickle Cell Disease (SCD) Sickle cell disease (SCD) is a group of inherited red blood cell disorders. In SCD, the red blood cells become hard and sticky and look like a C-shaped farm tool called a “sickle. ” Steps to Better Health Toolkit What Is Sickle Cell Trait?
Complications of Sickle Cell Disease Sickle Cell Data Collection (SCDC) Program Real Stories From People Living with Sickle Cell Disease Scientific Articles about Sickle Cell Disease Sickle Cell Information for Healthcare Providers
Based on current listing details, eligibility includes: Georgia State University Research Foundation, Inc. is a recipient. Applicants should confirm final requirements in the official notice before submission.
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