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Pediatric Epilepsy Research Foundation is a private corporation based in DALLAS, TX. The foundation received its IRS ruling in 2006. The principal officer is Roy Elterman. It holds total assets of $35.2M. Annual income is reported at $6.8M. Total assets have grown from $1.5M in 2011 to $35.2M in 2024. The foundation is governed by 14 officers and trustees. Support advances in pediatric neurologic disease care by encouraging and funding multi-center collaboration and mentorship to accelerate progress in clinical and health services research in Canada and the United States. Tax records are available from 2016 to 2024. The foundation primarily funds organizations in United States and Canada. According to available records, Pediatric Epilepsy Research Foundation has made 118 grants totaling $6.6M, with a median grant of $20K. Annual giving has grown from $630K in 2020 to $761K in 2023. Grantmaking activity was highest in 2022 with $4.1M distributed across 50 grants. Individual grants have ranged from N/A to $409K, with an average award of $56K. The foundation has supported 45 unique organizations. The foundation primarily supports organizations in Colorado, Kentucky, California, which account for 17% of all grants. Grantmaking reaches organizations across 21 states. Contributions to this foundation are tax-deductible.
Sixteen non-profit organizations were supplied grants for pediatric epilepsy and neurology research.
Up to 3 years of support for multicenter infrastructure development in pediatric neurology, up to $300,000 total.
Career development grant for early-stage child neurologists and developmental pediatricians, $150,000 total ($75,000 per year for 2 years).
Career development grant for early-stage child neurologists and developmental pediatricians, $150,000 total ($75,000 per year for 2 years).
$50,000 award requiring 1:1 institutional match. Supports child neurology researchers between unsuccessful NIH applications.
Support for early-stage investigators reapplying for NIH K08/K23 or CNCDP-K12 career development awards.
Support for conference attendance including EF Pipeline Conference.
Support advances in pediatric neurologic disease care by encouraging and funding multi-center collaboration and mentorship to accelerate progress in clinical and health services research in Canada and the United States. Based on available records, the foundation has funded 118 grants. Its grantmaking reaches organizations primarily in CO, KY, CA.
Pediatric Epilepsy Research Foundation has distributed a total of $6.6M across 118 grants. The median grant size is $20K, with an average of $56K. Individual grants have ranged from N/A to $409K.
The application deadline is 2026-04-15. Researchers must hold appointments at U.S. or Canadian institutions. Grant funds support research only in these regions.
Pediatric Epilepsy Research Foundation is headquartered in DALLAS, TX. While based in TX, the foundation distributes grants to organizations across 21 states.
| Name | Title | Compensation | Benefits | Total |
|---|---|---|---|---|
| Renee Shellhaas | PRESIDENT-EL | $63K | $0 | $63K |
| Teri Behnke | DIRECTOR | $0 | $0 | N/A |
| Roy D Elterman Md | PRESIDENT | $0 | $0 | N/A |
| Sookyong Koh Md | DIRECTOR | $0 | $0 | N/A |
| Lori Jordan | DIRECTOR | $0 | $0 | N/A |
| Peter Camfield Md | DIRECTOR | $0 | $0 | N/A |
| W Donald Shields Md | VICE PRESIDE | $0 | $0 | N/A |
| Niko Kaciroti | DIRECTOR | $0 | $0 | N/A |
| John Murray | EMERITUS | $0 | $0 | N/A |
| Herbert Winokur | EMERITUS | $0 | $0 | N/A |
| Deborah Hirtz Md | DIRECTOR | $0 | $0 | N/A |
| E Martina Bebin Md | DIRECTOR | $0 | $0 | N/A |
| Dennis Dlugos | DIRECTOR | $0 | $0 | N/A |
| Stephen Ashwal Md | DIRECTOR | $0 | $0 | N/A |
Total Giving
N/A
Total Assets
$35.2M
Fair Market Value
N/A
Net Worth
$32.9M
Grants Paid
N/A
Contributions
N/A
Net Investment Income
N/A
Distribution Amount
N/A
Total Grants
118
Total Giving
$6.6M
Average Grant
$56K
Median Grant
$20K
Unique Recipients
45
Most Common Grant
$10K
of 2023 grantees were first-time recipients
| Recipient | Location | Amount | Year |
|---|---|---|---|
| University Of AlabamaRESEARCH | Birmingham, AL | $10K | 2023 |
| Pediatric Epilepsy Research ConsortRESEARCH | Denver, CO | $288K | 2023 |
| University Of MichiganRESEARCH | Pittsburgh, PA | $90K | 2023 |
| Phoenix Children'S HospitalRESEARCH | Phoenix, AZ | $90K | 2023 |
| OhsuRESEARCH | Portland, OR | $90K | 2023 |
| Child Neurology SocietyRESEARCH | St Paul, MN | $50K | 2023 |
| Weill Cornell MedicineRESEARCH | New York, NY | $25K | 2023 |
| American Epilepsy SocietyRESEARCH | Chicago, IL | $25K | 2023 |
| Camp Brigadoon VillageEPILEPSY CAMP | Halifax | $20K | 2023 |
| Regents Of U Of NebraskaRESEARCH | Omaha, NE | $10K | 2023 |
| The Arc Of The UsRESEARCH | Washington, DC | $10K | 2023 |
| Hospital For Sick ChildrenRESEARCH | Chicago, IL | $10K | 2023 |
| Ut Southwestern Medical CenterRESEARCH | Dallas, TX | $10K | 2023 |
| Washington UniversityRESEARCH | St Louis, MO | $10K | 2023 |
| Ut DallasSTUDENT SUPPORT | Richardson, TX | $2K | 2023 |
| University Of Colorado - KnuppRESEARCH | Denver, CO | $409K | 2022 |
| Child Neurology FoundationRESEARCH | Lexington, KY | $305K | 2022 |
| University Of TennesseeRESEARCH | Memphis, TN | $111K | 2022 |
| Baylor College Of MedicineRESEARCH | Dallas, TX | $106K | 2022 |
| Children'S National Medical CenterRESEARCH | Silver Spring, MD | $100K | 2022 |
| Children'S Hospital Of Orange CountRESEARCH | Orange, CA | $100K | 2022 |
| Emory UniversityRESEARCH | Atlanta, GA | $90K | 2022 |
| International League Against EpilepRESEARCH | Flower Mound, TX | $20K | 2022 |