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Spinal Muscular Atrophy Foundation is a private corporation based in NEW YORK, NY. The foundation received its IRS ruling in 2003. The principal officer is Sma Foundation. It holds total assets of $50.2M. Annual income is reported at $19.5M. Total assets have grown from $1.6M in 2011 to $50.2M in 2024. The foundation is governed by 11 officers and trustees. The foundation operates in the area of education. According to its most recent filing, the foundation only makes contributions to preselected charitable organizations. Tax records are available from 2016 to 2024. The foundation primarily funds organizations in New York, Massachusetts and California. According to available records, Spinal Muscular Atrophy Foundation has made 6 grants totaling $1.9M, with a median grant of $246K. Annual giving has grown from $598K in 2021 to $1.3M in 2022. Individual grants have ranged from $53K to $654K, with an average award of $318K. The foundation has supported 4 unique organizations. Grants have been distributed to organizations in California and New York and Massachusetts. Contributions to this foundation are tax-deductible.
Smallest Grant
$53K
Median Grant
$66K
Average Grant
$149K
Largest Grant
$413K
Based on 4 grants from the most recent 990-PF filing.
No program descriptions are available for this foundation. Many private foundations report program activities in their annual 990-PF filings — check the Tax Filings section below for the most recent filing.
Spinal Muscular Atrophy Foundation primarily funds organizations in the area of education. Based on available records, the foundation has funded 6 grants. Its grantmaking reaches organizations primarily in CA, NY, MA.
Spinal Muscular Atrophy Foundation has distributed a total of $1.9M across 6 grants. The median grant size is $246K, with an average of $318K. Individual grants have ranged from $53K to $654K.
Spinal Muscular Atrophy Foundation typically selects its grantees rather than accepting unsolicited proposals.
Spinal Muscular Atrophy Foundation is headquartered in NEW YORK, NY. While based in NY, the foundation distributes grants to organizations across 3 states.
| Name | Title | Compensation | Benefits | Total |
|---|---|---|---|---|
| Story Landis | DIRECTOR | $0 | $0 | N/A |
| Gerald Fischbach Md | DIRECTOR | $0 | $0 | N/A |
| Jonathan Leff | DIRECTOR | $0 | $0 | N/A |
| Douglas Cole Md | DIRECTOR | $0 | $0 | N/A |
| Juli Oh Esq | TREASURER | $0 | $0 | N/A |
| Andrew Knight | DIRECTOR | $0 | $0 | N/A |
| Simon Prisk Esq | DIRECTOR | $0 | $0 | N/A |
| Loren Eng | PRESIDENT | $0 | $0 | N/A |
| Helen Meates | DIRECTOR | $0 | $0 | N/A |
| Dinakar Singh | BOARD CHAIRMAN | $0 | $0 | N/A |
| Stephen Mikita Esq | DIRECTOR | $0 | $0 | N/A |
Total Giving
N/A
Total Assets
$50.2M
Fair Market Value
N/A
Net Worth
$46.3M
Grants Paid
N/A
Contributions
N/A
Net Investment Income
N/A
Distribution Amount
N/A
Total Grants
6
Total Giving
$1.9M
Average Grant
$318K
Median Grant
$246K
Unique Recipients
4
Most Common Grant
$53K
of 2022 grantees were first-time recipients
| Recipient | Location | Amount | Year |
|---|---|---|---|
| Columbia UniversityTO SUPPORT PNCR RESEARCH | New York, NY | $79K | 2021 |
| Stanford UniversityMODAILTY-AGNOSTIC DRUG PROTOTYPING RESEARCH PROJECTS | Palo Alto, CA | $654K | 2022 |
| Children'S Hospital Of BostonTO SUPPORT PNCR RESEARCH | Boston, MA | $53K | 2021 |
| University Of RochesterTO SUPPORT PNCR RESEARCH | Rochester, NY | $53K | 2021 |