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"APBD Research Foundation 2025 Pilot Grant Program" is currently closed and not accepting applications.
APBD Research Foundation 2025 Pilot Grant Program is sponsored by APBD Research Foundation (administered by the Orphan Disease Center, University of Pennsylvania). Provides one-year grants for research on Adult Polyglucosan Body Disease, focusing on biomarker development.
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APBD Research Funding Opportunity Through UPenn’s Million Dollar Bike Ride Pilot Grant Program — Adult Polyglucosan Body Disease (APBD) Research Foundation APBD Research Funding Opportunity Through UPenn’s Million Dollar Bike Ride Pilot Grant Program The APBD Research Foundation in partnership with the Orphan Disease Center (ODC) at the University of Pennsylvania is pleased to announce the 2023 Million Dollar Bike Ride Pilot Grant Program.
We are honored to be a part of this Program that offers up to 39 different research grant opportunities focusing on 31 different rare diseases, including APBD. Funds for the APBD research were raised by our community during the Million Dollar Bike Ride on June 10, 2023. The 2023 MDBR Pilot Grant Program provides a one‐year grant to support and advance APBD research.
Two grants for $50,000 each will be awarded. We are seeking research proposals that will advance the understanding of mechanisms of disease or clinical phenotyping that will facilitate future treatment trials.
Of particular interest would be basic science or clinical studies aimed at biomarker development (including neurofilament light chain and glial fibrillary acidic protein assays) to help in the design of future therapeutic trials or novel treatments. Studies that have a strong likelihood of future federal funding are a plus.
The primary focus for this grant opportunity is the identification of a biomarker(s) that could be used to demonstrate the effectiveness of a therapeutic for APBD. Investigations related to the development of approaches that will prevent polyglucosan body accumulation or will facilitate its removal from the central and peripheral nervous systems will also be considered.
Letter of Interest (LOI) applications are due on September 15, 2023, by 8pm EST. For more details about how to submit your LOI and the application process, visit the ODC website. This Request for Applications (RFA) is open to the international research community.
All individuals holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation are eligible to respond to this RFA. Please feel free to share this funding opportunity with your peers!
Check out our recently funded MDBR grant recipients and their research here: – Berge Minassian, MD and Mayank Verma MD, PhD (UT Southwestern Medical Center) – Matthew Gentry, PhD (University of Florida) – Wyatt Yue, PhD (Newcastle University, UK) – Felix Nitschke, PhD (UT Southwestern Medical Center) Historic Milestone: APBD Community Raises Over $200,000 to Advance Research We are thrilled to announce that our community raised an incredible $201,177 during the 2026 APBD Tour de Friends Rally for Research fundraising campaign, exceeding our original goal of $120,000.
Dr. Jeff Levenson, APBDRF's Co-President, Receives the Academy of General Dentistry's Lifelong Learning & Service Recognition The Academy of General Dentistry (AGD) recently awarded the APBD Research Foundation's co-president Dr. Jeff Levenson with the Lifelong Learning & Service Recognition (LLSR). He received this award along with 36 other LLSR recipients during the AGD’s scientific session in Las Vegas, NV on June 27, 2026.
Foundation Launches Drug Repurposing Initiative in Partnership with COMBINEDBrain In April 2026, the APBD Research Foundation announced participant recruitment for its APBDRF Drug Repurposing Study initiative in partnership with COMBINEDBrain. We are grateful to the patients and families in our community that have volunteered to provide biosamples to help make this study a reality.
APBD Research Foundation 2025 Rally for Research Grant Series: Duke University Scientist Awarded Pilot Grant to Evaluate Gene Replacement Therapy for APBD and Other Forms of GSD IV The APBD Research Foundation is pleased to announce the third of our 2025 Rally for Research Pilot Grant Program grant recipients: Rebecca Koch, PhD, RDN at Duke University.
Her research project is entitled, Gene Therapy to Treat the Neurophenotype of Glycogen Storage Disease Type IV.
APBD Research Foundation 2025 Rally for Research Grant Series: UTSW Medical Center Scientist Awarded Pilot Grant to Evaluate Treatment for an Allied Disease in APBD The APBD Research Foundation is pleased to announce the second of our 2025 Rally for Research Pilot Grant Program grant recipients: Mayank Verma, MD, PhD at UTSW Medical Center.
His research project is entitled Preclinical Validation and Biomarkers in APBD of a GYS1-ASO Currently in Phase 1 Clinical Trial for Lafora Disease Foundation Submits Public Comment to the FDA on the Plausible Mechanism Framework for Accelerating Individualized Therapy Development for Rare Diseases On behalf of the APBD community, the APBD Research Foundation has responded to the US Food and Drug Administration's (FDA) request for public comments for its recently released draft guidance for the use of the Plausible Me chanism Framework for individualized genetic therapies.
JUST PUBLISHED: New Study Highlights That Over 34,000 People Worldwide Are Affected by APBD and Other Forms of GSD IV We are excited to share that our global genetic prevalence of GBE1-related diseases study has been published in the Journal of Inherited Metabolic Disease Reports (JIMD Reports) .
Advancing APBD Research Has Never Been More Urgent or More Promising We are excited to launch the 2026 APBD Tour de Friends Rally for Research Fundraising Campaign to raise $150,000. We Need You for the APBDRF Drug Repurposing Study! The APBD Research Foundation is excited to announce an opportunity for you to play a direct role in advancing treatment research.
You do not have to leave home to participate. Carol Rosenstock Joins the APBD Research Foundation’s Board of Directors The APBD Research Foundation is delighted to announce the appointment of Carol Rosenstock to its Board of Directors. This block has no content yet.
Items you add to the page connected to this block will display here. APBD Research Foundation to Participate in the Glycogen Storage Disease Value Project Michael Canmann Joins the APBD Research Foundation’s Board of Directors
According to the current listing, eligibility includes: Researchers focused on Adult Polyglucosan Body Disease. Confirm the full requirements in the official notice before applying.
The current listing shows up to $100,000. Verify award ceilings, matching requirements, and allowable costs in the official notice.
The published deadline was September 26, 2025, which has passed. Check the official notice for any future application windows before investing time in a proposal.
APBD Research Foundation 2025 Pilot Grant Program is funded by APBD Research Foundation (administered by the Orphan Disease Center, University of Pennsylvania). Verify program details on the funder's official page before applying.
Start from the official opportunity page linked in this listing — it carries the sponsor's submission instructions.
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