CARE FOR RARE Collaborative Awards

CARE FOR RARE Collaborative Awards is sponsored by Solving Kids' Cancer (and other foundations). This opportunity supports mission-aligned projects and measurable outcomes.

Care For Rare Funding Collaborative info@solvingkidscancer. org Ελληνικά Ελληνικά CARE FOR RARE Collaborative Awards $600,000 to Advance Research in Aggressive Childhood Brain Tumors New York, NY, Oct 1, 2025 – The CARE FOR RARE Collaborative, comprised of six pediatric cancer charities, is announcing $600,000 in funding for rare childhood brain cancers.

Three $200,000 grants have been awarded to support research on Embryonal Tumor with Multilayered Rosettes (ETMR) and Atypical Teratoid/Rhabdoid Tumor (ATRT).

Johannes Gojo, MD, PhD, Professor of Pediatric Neuro-Oncology, Medical University of Vienna, Austria, for “Advanced Resistance Mapping and Overcoming Relapse of ETMR (ARMOR)” Eric Raabe, MD, PhD, Associate Professor of Pediatric Oncology and Pathology, Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins University School of Medicine for “Combined epigenetic targeting in ATRT” Rajeev Vibhakar, MD, PhD, Professor, Department of Pediatrics, Neuro-Oncology Division, University of Colorado, Denver for “Targeting CDK7 for AT/RT Therapy” These grants, totaling $600,000, aim to advance discoveries to improve outcomes in these rare and aggressive pediatric brain tumors that affect very young children.

ETMR almost exclusively affects children under four years of age and currently has a dismal 5-year survival rate of just 10–30%, despite intensive therapies. Driven by unique molecular features, these tumors are often therapy-resistant or relapse quickly, and very little is known about why current treatments fail.

ATRT is a rare and aggressive brain tumor that primarily affects children under the age of three and carries a very poor prognosis, with a 5-year survival rate around 30% despite intensive treatment. Defined by specific genetic alterations, ATRTs often recur rapidly, and the reasons behind treatment resistance remain poorly understood.

About The CARE FOR RARE Collaborative The CARE FOR RARE Collaborative is a bold effort to address the lack of research and funding in these tumor types with the goal to improve survival in these children and includes the following charities: Bibi Fund, The Jonah Finn Foundation, Gold Ribbon Kids Cancer Foundation, Solving Kids’ Cancer, Hope4ATRT Foundation, and the Ty Louis Campbell Foundation “We urgently need to understand why these tumors are so difficult to treat,” said Cindy Campbell, Co-Founder of Ty Louis Campbell Foundation.

“Our collaborative is addressing this need head on, and we won’t stop until we see dramatic improvements in outcomes in these understudied, rare tumors. ” Solving Kids’ Cancer is not just our name, it’s our mission.

We help accelerate new clinical trials of next-generation treatments including immunotherapy, targeted agents, and combination therapies through research advocacy, with an understanding of the childhood cancer landscape and current unmet needs to wisely invest in innovative projects. Hope4ATRT Foundation , a research entity of Out of Zion, Inc., supports families fighting ATRT by providing up-to-date resources and research.

Our mission is to be a centralized site where parents can find information to navigate their child’s diagnosis, treatment, and support. Gold Ribbon Kids Foundation is dedicated to advancing research, advocacy, and support for children and families affected by pediatric cancer. Our mission is to drive innovation in treatments for rare childhood cancers while providing hope and resources to families in need.

We partner with leading researchers and organizations worldwide to accelerate cures. The Bibi Fund for Rare Childhood Cancer Research funds pediatric cancer research with a focus on the rarest and most aggressive childhood brain cancers.

The Jonah Finn Foundation ’s mission is to catalyze groundbreaking preclinical research into ETMR and other rare pediatric brain cancers, fostering hope for a cure by supporting transformative research and encouraging global scientific collaboration. The Ty Louis Campbell Foundation funds innovative research and clinical trials specifically geared toward the treatment of the most aggressive childhood cancers.

Our mission is to help fund the intelligence and technology that will improve long-term survival rates and minimize side-effects for children diagnosed with the deadliest cancers, while helping to care for families when their child is in treatment by providing financial assistance and uplifting experiences. For media inquiries contact Kristi McKay kristi@solvingkidscancer.

org Call for Research Grant Proposals: Advancing Medulloblastoma Research Childhood Cancer Awareness Month: Lace Up for Kids 2025 Ways to Give Back During the Holidays Ahana’s Story of Strength Ahana’s Story of Strength with High-Risk Neuroblastoma Every day, over 1,000 children worldwide are diagnosed with cancer,1 and for many families, that diagnosis means facing an uncertain future.

At just 20 months old, Ahana was diagnosed with a rare and aggressive cancer that had already spread through her small body. Her family’s search for life-saving childhood cancer treatments led them from South Africa to Spain and possibly toward a clinical trial in New York.

Ahana’s journey shows the importance of supporting organizations like Solving Kids’ Cancer, which works to find, fund, and advocate for advanced treatments that give hope to families fighting against tough-to-treat rare pediatric cancers.

Advancing Childhood Cancer Research: SKC’s 2024 Milestones 2024 Lace Up for Kids Recap Lace Up for Kids: Your Impact on Childhood Cancer Research At Solving Kids’ Cancer, our mission has always been driven by hope — hope for better treatments, hope for breakthroughs, and most importantly, hope for every child fighting cancer. This year’s Lace Up for Kids campaign was nothing short of inspiring.

Together, we’ve raised over $264,000 across the entire campaign, funding innovative childhood cancer research and providing more treatment options for children in need. From coast to coast, nearly 4,000 participants have stepped up to lace up their gold shoelaces and make a difference. Whether it was through schools, sports teams, or community groups, the show of support has been overwhelming throughout the years.

Over 7,823 donations have been made to accelerate new treatments, and the hashtag #CareWearShare has been used 13,864 times, spreading the message far and wide! Stories of Impact: Erin Martin Gold Laces for Childhood Cancer Awareness Month: Erin’s Story Lace Up for Kids and fight Childhood Cancer! Smithtown Goes Gold for Childhood Cancer Smithtown Goes Gold for Childhood Cancer Awareness Month!

Osteosarcoma Survivor Dr. Kurt Weiss Osteosarcoma Survivor to Surgeon: Dr. Kurt Weiss’ Story info@solvingkidscancer. org 1 East 53rd Street, 8th Floor info@solvingkidscancer. org 1 East 53rd Street, 8th Floor Thank you for contacting us.

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