Cooperative Newborn Screening System Priorities Program (NBS Co-Propel)

Cooperative Newborn Screening System Priorities Program (NBS Co-Propel) is sponsored by Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB). This program strengthens the newborn screening system to provide screening, counseling, and health care services to newborns and children with, or at risk for, heritable disorders.

This program builds on the Newborn Screening (NBS) Propel program to ensure all babies receive better screening and care. It shares the same goals as the NBS Propel program, but it allows states to partner as a region to apply for funding. Awardees also do not have to be a state agency, and they can form partnerships with organizations that serve newborn screening programs.

We awarded $3. 4 million in 2024 to seven states. * Read the closed funding opportunity notice (HRSA-24-052)") for details.

* This funding adds to the 2023 NBS Propel funding for 28 states) and U.S.-affiliated jurisdictions. This program expands the reach of the NBS Propel Program. It supports 35 states and 4 U.S.-affiliated jurisdictions (Republic of Marshall Islands, Puerto Rico, American Samoa, and the U.S. Virgin Islands).

**Newborn Screening Propel and Co-Propel Program Reach** Map of the United States showing HRSA Newborn Screening Propel and Co-Propel program reach.

HRSA Newborn Screening Propel/Co-Propel funded states/territories: American Samoa, Arizona, Arkansas, Colorado, Connecticut, Florida, Georgia, Indiana, Iowa, Kansas, Louisiana, Mane, Massachusetts, Michigan, Minnesota, Mississippi, Montana, Nebraska, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Puerto Rico, Republic of the Marshall Islands, Rhode Island, South Carolina, South Dakota, Tennessee, Texas, Utah, U S Virgin Islands, Virginia, Washington, and Wisconsin.

Non HRSA Newborn Screening Propel/Co-Propel funded states/territories: Alabama, Alaska, California, Delaware, District of Colombia, Federated States of Micronesia, Guam, Hawaii, Idaho, Illinois, Kentucky, Maryland, Missouri, Nevada, Northern Mariana Islands, Palau, Pennsylvania, Vermont, West Virginia, and Wyoming. ## How the NBS Co-Propel program works This program builds on the NBS Propel program.

Some awardees form partnerships to support multiple state programs.

This approach fosters teamwork and new ideas so they can continue to: * Address their specific challenges * Ensure timely data collection and reporting * Support long-term follow-up for individuals with Severe Combined Immunodeficiency (SCID) and other NBS conditions By June 2028, awardees must: * Develop a data collection plan together with our newborn screening technical assistance center, NewSTEPs").

This plan must measure the percentage of 3-year-old children with at least one heritable condition (condition passed from a parent through genes) found and treated through newborn screening and who are now thriving. * Track and report on at least one long-term, follow-up measure for a heritable condition found through newborn blood spot screening.

## In support of the _Blueprint for Change_ Newborn screening programs are vital for improving the health of babies and children. By investing in these state programs, this work supports the national _Blueprint for Change for Children and Youth with Special Health Care Needs_. This program fills critical gaps and makes state programs more effective.

This way, every family can get what their child needs so that they can play, go to school, and grow up to become a healthy adult. Find open positions with HRSA"). Need more information, or have a specific question about this program?

Contact us at NBSprograms@hrsa. gov. Want to understand more about newborn screening? Visit the Newborn Screening Information Center for information on health conditions, the process, and your state’s program.