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Find similar grantsFIRST-Aid Fund is sponsored by Foundation for Ichthyosis & Related Skin Types (FIRST). A grant program to help provide meaningful support to individuals affected with ichthyosis in the management of their skin care needs.
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Or search similar grants →Extracted from the official opportunity page/RFP to help you evaluate fit faster.
* Types of Ichthyosis, or EDD * Recently Published Research Summaries * Bonding & Breast Feeding * Building Your Medical Team * Feeling at Home in the NICU * Is My Child Overheating?
* Scalp, Fingernails, & Scratch Care * Special Education Accommodations * Understand Children’s Rights in School * Guide for Working Adults * Advocating in Hospitals and Nursing Homes * Symptoms and Complications * Medical Care & Treatments * What is a Child Life Specialist?
* Ichthyosis – Not just “Skin Deep” * Assessing Your Mental Health & Questions to Ask * Why We Need More Research Into Mental Health’s Impact * Traveling with Ichthyosis * TSA – Disabilities and Medical Conditions * Diya & Aliya’s Friends (DAF) Fund * National Conference Fund * UFIRST Scholars Program * Social Security Disability * Current Clinical Trials * Peer Support Navigator Program * Become a Peer Support Navigator * Books from the Community * Volunteer Opportunities * FIRST Awareness Spirit Items New Parent InfoTypes of Ichthyosis # 2026 National Conference FIRST Research GrantsFIRST Research Grant Program Search our global database of dermatologists and other specialists with ichthyosis training.
Explore the largest ichthyosis directory in the world with over 30+ Types, including name variations and genetic designations. Your first stop for valuable resources like financial aid, PDF guides, and genetic diagnoses. Connect to our global network of individuals navigating the challenges of ichthyosis and related skin types.
## Proudly Celebrating 45 Years In our Ichthyosis Community If you or a family member has ichthyosis or a related skin type, and is in need of support, education, connection, and compassion, you have come to the right place. We were chartered as a nonprofit in 1981 and we are currently the leading patient advocacy organization in the world for individuals with ichthyosis and related skin disorders.
We are deeply dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types. ###### **ACADEMIC & CORPORATE PARTNERS** Join us at one of our upcoming events!
* by Foundation for Ichthyosis & Related Skin Types, Inc. #### 4th Annual Cornhole Tournament DATE: September 12, 2026 @ 1:00 PM LOCATION: 19044 Vanderhaven Lane, Livonia, Michigan, 48150 DESCRIPTION: The Samantha and Adam Schlitt and Jane and James Goff are once again hosting their cornhole tournament.
It will be… View More * by Foundation for Ichthyosis & Related Skin Types, Inc. #### New Member Orientation DATE: October 6, 2026 @ 5:00 PM LOCATION: Zoom DESCRIPTION: Please join FIRST CEO, Christopher Boynton for a live Zoom to learn more about the programs and services that FIRST… View More ## Recent News & Articles * DATE: 08/03/2026 #### Diya & Aliya Friends Fund Applications Now Open The Shahnaz Kraybill family realize that the fight against ichthyosis is not only medical but also financial.
As families of… DAF-ANNC-C DAF-ANNC-D DAF-ANNC-F DAF-ANNC-FAL DAF-ANNC-FH DAF-ANNC-U DAF-ANNC-W * DATE: 07/07/2026 #### Bailey’s Broadway Birthday Bash Hits a High Note Once Again! Bailey’s Broadway Birthday Bash was another success!
Held on June 20, 2026, it was a celebration of Bailey Fabiano’s birthday,… grassroots * DATE: 06/30/2026 #### A Life-Changing Weekend From June 26–28, 2026, the FIRST community came together in Minneapolis, Minnesota, for an unforgettable National Conference.
It was three… conferences ## Your Support Changes Lives Help us fund life-changing research and provide essential support for families living with ichthyosis and other rare skin conditions. **Here are some examples of how your support matters:** * $25:Provides a “New Family” welcome kit.
* $100:Funds one week of cream * $500:Sponsors a scholarship for the National Conference ## Personal Voices & Stories “FIRST gave us the NICU guide we were desperate for. It completely changed our son’s care plan. Starting with the night he was born, we knew we weren’t alone anymore.
” “The One Day Meetup was everything. From entering the building to leaving, I enjoyed literally every minute. The experience was definitely life changing.
It’s been almost two weeks and I am still on a high from meeting everyone and learning soooo much. ” “The UFIRST Scholarship Fund relieved stress around paying for college. It also financially allowed me to continue into a grad school program.
” Affected Adult and recent MBA grad “It takes a lot to care for my skin, and now thanks to the FIRST Foundation, I’m able to get more of what I need. Thank you all from the bottom of my heart and continue to be a positive change in people’s lives. ” FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders.
FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy. HistoryOur PeopleAnnual Report & FinancialsPress Room Recent ArticlesPrivacy & Permissions Foundation for Ichthyosis & Related Skin Types, Inc. PO Box 1067, Lansdale, PA 19446 info@firstskinfoundation.
org This information is provided as a service to patients and parents of patients who have ichthyosis. It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.
Neither FIRST, itsBoard of Directors,Medical & Scientific Advisory Board, Board of Medical Editors norFoundation staffand officials and sponsoring foundations endorse any treatments or products reported here. All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.
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According to the current listing, eligibility includes: Individuals affected with some form of ichthyosis or a related skin type. Must be engaged as a donor member of the FIRST community prior to applying for funding and demonstrate financial need. Confirm the full requirements in the official notice before applying.
FIRST-Aid Fund is funded by Foundation for Ichthyosis & Related Skin Types (FIRST). Verify program details on the funder's official page before applying.
Start from the official opportunity page linked in this listing — it carries the sponsor's submission instructions.