Grants & Donations (Rare Disease Community)

Grants & Donations (Rare Disease Community) is sponsored by Sarepta Therapeutics. Sarepta Therapeutics provides grant funding for programs that enable education, address unmet needs of rare disease patients, promote high standards of care, raise awareness of ongoing research, or focus on other critical community initiatives.

Priority is given to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company, but requests are considered across the spectrum of neuromuscular and rare diseases.

Grants & Giving: A Core Part of Our Mission | Sarepta Therapeutics Serving the rare disease community through corporate giving programs Program & Event Sponsorships Giving: A Core Part of Our Mission Serving the rare disease community goes beyond developing precision genetic medicines. Sarepta is committed to providing support at every stage of a patient’s journey.

Our partnerships with patient advocacy groups are fundamental to this work.

We provide grants, donations, medical education support, and sponsorships to advocacy groups, nonprofit organizations, academic institutions, scientific and medical associations, continuing medical education providers, and other organizations across the spectrum of neuromuscular and rare diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company.

Sarepta provides grant funding for programs that enable education, address unmet needs of rare disease patients, promote the highest standards of care, raise awareness of ongoing research, or focus on other critical community initiatives.

Requests will be considered across the spectrum of neuromuscular and rare diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company. Applications are accepted on a rolling basis and are generally reviewed monthly by the committee. Our team will review your request and contact you within 90 days of your submission.

Requests considered may include those that support: the communities Sarepta serves globally programs and activities that seek to advance medical and disease education, and that address the unmet needs of patients charitable causes and events that are of importance to the communities we serve collaborative learning experiences through engagement with various stakeholders from the Duchenne community programs that target a broad population of patients Requests that typically cannot be supported may include: funds that will benefit an individual or specific subset of the disease community proposals for support of general education or programs if one of Sarepta’s disease areas of focus are not highlighted programs that duplicate efforts that are actively ongoing in the community or that Sarepta has already supported If you have any questions about grants or sponsorships, please contact: [email protected] .

Sarepta sponsors programs and events that support, raise awareness, and advance education and scientific knowledge around rare diseases and the experience of patients living with those diseases. Sarepta’s funding priorities include support programs that focus on neuromuscular and rare disorders, with priority on Duchenne muscular dystrophy and limb-girdle muscular dystrophy.

Applications are accepted on a rolling basis throughout the year and are generally reviewed monthly by the committee. Our team will review your request and contact you within 90 days of your submission. Sponsorship applications must include a list of the benefits for each funding level.

If you have any questions about grants or sponsorships, please contact [email protected] . We are committed to developing precision genetic medicines aimed to improve and extend the lives of patients with rare genetic-based diseases. We know we can’t accomplish this mission alone.

Sarepta’s Annual grant Program for Neuromuscular Fellowships is available to healthcare institutions in the United States with a pre-established, accredited fellowship program that are interested in 1-year funding to support a Genetic Counselor, Physician, Nurse Practitioner, or Physical Therapist Fellow. Sarepta’s application cycle for 2027 requests will be open from July 13, 2026, to November 13, 2026.

If you have any questions about fellowships, please contact: [email protected] . Sarepta Therapeutics is committed to supporting high‑quality, independent medical education programs focused on areas of unmet medical need, with priority given to Duchenne muscular dystrophy (DMD), myotonic dystrophy type 1 (DM1), and facioscapulohumeral muscular dystrophy type 1 (FSHD1).

Educational grants may be awarded to academic medical centers, medical education companies, and medical specialty societies for conferences, seminars, and other educational meetings.

All supported programs must maintain independence in content development, faculty selection, and educational delivery, and must comply with the accreditation Council for Continuing Medical Education (ACCME) Standards for Integrity and Independence in Accredited Continuing Education. To support balanced and independent education, applicants are expected to seek funding from multiple sponsors.

Application Requirements and Limitations All grant submissions must include: A clear educational rationale, including identification of relevant educational gaps A description of how the proposed activity will address the identified gaps Defined learning objectives A detailed, itemized budget Sarepta will not provide support for: Programs for which Sarepta would be the sole or exclusive sponsor Travel, lodging, meals, or food and beverage expenses Promotional, product‑specific, social, or entertainment activities Sarepta’s application cycle for 2027 grant requests will be open from June 15, 2026, through November 15, 2026.

Applications are reviewed on a rolling basis, with final funding decisions communicated by January 2027. Sarepta reserves the right to close the application cycle early without prior notice. For questions about grants or sponsorships, please contact: [email protected] .

Route 79, The Duchenne Scholarship Program Route 79, The Duchenne Scholarship Program is designed to help students diagnosed with Duchenne muscular dystrophy pursue their post-high school educational goals. There are 79 exons in the dystrophin gene impacted by Duchenne, and the route traveled by every person with Duchenne is distinct.

Sarepta’s goal through this program is to acknowledge and support individuals with Duchenne who are mapping out their future via educational pursuits. Additional information is available here.