NF Northeast Seed Grant and Seed Funds for Researchers

NF Northeast Seed Grant and Seed Funds for Researchers is sponsored by NF Northeast. This program provides early-stage biomedical research funding focused on neurofibromatosis (NF).

NEW HOME: We help NF patients through their Journey of Hope - Neurofibromatosis Northeast NF Northeast is the organization that helps patients through their Journey of Hope. A diagnosis of NF1, NF2-related schwannomatosis, or schwannomatosis can happen to anyone at any age and at any time. Our Vision: A world where the burden of neurofibromatosis does not exist.

Our Mission: To bring hope to those affected by neurofibromatosis and allied disorders. Neurofibromatosis, pronounced neuro-fibroma-tosis, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. NF affects all races, all ethnic groups and both sexes equally.

NF affects more people worldwide than cystic fibrosis and muscular dystrophy combined! For more information on NF → NF Northeast is a highly regarded resource for patients, physicians and scientists. We have provided over $3 million in research grants, and through our advocacy, have been pivotal in generating over $600 million in federally funded NF research.

We are known as the “organization with the heart” because ours is a strong and caring community that provides support to newly diagnosed patients and their families. Learn about NF Northeast → Being faced with a diagnosis of NF can be extremely overwhelming. NF Northeast has created programs and resources to help patients and families cope with the challenges that come with NF.

Our approach is simple : Science, Solutions, Support . We hope that you will find comfort in knowing that NF Northeast is with you every step of the way. For more on family & patient resources → NF Northeast is committed to advancing biomedical research in fields relevant to neurofibromatosis and has been funding research proposals since 1990.

To date, we have granted close to $3,000,000 to fund proposals from researchers or institutions both within and outside of the northeast United States. Fields of research include basic science, translational, and applied clinical trials. Discover our research programs → There are a number of ways to support the patients, families, researchers and others looking to fulfill our mission of hope and progress.

Donations; community networks; fundraising campaigns; third-party events; creating awareness; community outreach and many more. Find out how you can support our mission → NF Northeast is involved with numerous events every year involving hundreds of volunteers, families, organizational sponsors, and other supporters.

We raise awareness, provide opportunities for positive action and raise funds that support our many goals, programs and research. In addition, we strive to let you know about important news and progress that give hope to our entire community.

The STARFISH Clinical Trial for pain relief in non-NF2 related Schwannomatosis NF Coffee Chat - September Bringing Hope to Delaware: NF Northeast Expands Its Services NF Northeast is proud to announce the expansion of our services to the state of Delaware — bringing education, patient advocacy, financial resource guidance, community support, and research funding to ASICS Falmouth Road Race 2026 NF Northeast is so excited to again offer bibs for the ASICS Falmouth Road Race this year!

The race will take place on Sunday, August 16, 2026. In order to NF1 Community Education Series NF Northeast is excited to present our NF1 Community Education Series, sponsored by Alexion! Join us for two free virtual programs created for individuals and families affected by NF1.

Koselugo Approved in the US For Adults with NF1 We are incredibly excited to announce that Koselugo (selumetinib) has been FDA‑approved for adults with NF1‑related symptomatic, inoperable plexiform neurofibromas (PN)! Koselugo is an oral MEK inhibitor developed by Alexion, 🚴 Coast to the Cure is September 19! Join us at Stage Fort Park in Gloucester for Coast to the Cure, a one-day cycling event benefiting NF Northeast.

Whether you're an experienced cyclist or simply want to support the neurofibromatosis community, there's a route for you. Ride the coast. Support NF research.

Make an impact.