Rare Disease Grant Cycle (RDAP Member)

Rare Disease Drug Discovery Project Funding is sponsored by RTW Foundation. The RTW Foundation funds drug-discovery projects on ultrarare diseases, defined as those affecting fewer than 1000 people worldwide and lacking existing commercial drug-development programs. They prioritize proposals co-developed by rare disease foundations and their Rare Disease Advisors to accelerate research.

Rare Belonging® Grant Program is sponsored by Alexion Charitable Foundation. The Alexion Charitable Foundation's Rare Belonging® grant program supports programs and services that benefit individuals, caregivers, and families impacted by rare diseases, aligning with its mission to address health disparities within and among the rare disease community. Priorities include science-driven solutions, technology and innovation, patient supports, and research & policy focused on diagnostic pathways and systems improvements. The program specifically seeks to advance emotional well-being and educational opportunities, and provide relief for critical needs, especially for those living with or affected by a rare disease.

Alexion Charitable Foundation Grants is sponsored by Alexion Charitable Foundation. The Alexion Charitable Foundation (ACF) invests in projects to ensure that underserved communities have equitable pathways to the care, services, and resources they need to live healthier lives, with a focus on addressing health disparities within the rare disease community.