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ActiveRTW Charitable Foundation · 2026

Rare Disease Grant Cycle

Q: Who can apply for Rare Disease Grant Cycle?

According to the current listing, eligibility includes: Rare disease patient organizations that are current members of the Rare Disease Advocacy Partners (RDAP). A minimum time for engagement/Advising membership is required. Confirm the full requirements in the official notice before applying.

Q: How much funding does Rare Disease Grant Cycle offer?

The current listing shows tiered system: <$25K (small), $25K - $75K (medium), <$100K (large). Verify award ceilings, matching requirements, and allowable costs in the official notice.

Q: Who funds Rare Disease Grant Cycle?

Rare Disease Grant Cycle is funded by RTW Charitable Foundation. Verify program details on the funder's official page before applying.

Q: Is Rare Disease Grant Cycle available nationwide?

Yes — this listing is flagged as national in scope, so applicants across the U.S. may apply, subject to the sponsor's other eligibility criteria.

Q: How do I apply for Rare Disease Grant Cycle?

Applications go through the funder's official portal — the Apply Now link on this page goes there directly.

Quick Facts

Agency: RTW Charitable Foundation
Funding: Tiered system: <$25K (small), $25K - $75K (medium), <$100K (large)
Deadline: Check Source
Status: Active
Eligibility: Rare disease patient organizations that are current members of the Rare Disease Advocacy Partners (RDAP). A minimum time for engagement/Advising membership is required.
Grant Type: Research
Geographic Scope: National

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About This Grant

Rare Disease Grant Cycle is sponsored by RTW Charitable Foundation. The RTW Charitable Foundation's Rare Disease Grant Cycle provides targeted funding to family-led foundations and rare disease organizations that are members of the Rare Disease Advocacy Partners (RDAP).

These grants aim to advance therapeutic development in genetically defined diseases and close critical gaps that often delay progress for ultra-rare diseases, including early research, strategic planning, and development work.

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Official Opportunity Details

Extracted from the official opportunity page/RFP to help you evaluate fit faster.

* [[#IABV2SETTINGS#]](https://www. rtwf. org/rare-disease/rare-disease-grants/#) * Google 4Learn more about this provider Some of the data collected by this provider is for the purposes of personalization and measuring advertising effectiveness.

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uuid:#**Used to display and detect events on interactive maps. **Maximum Storage Duration**: Persistent**Type**: HTML Local Storage **mapbox. eventData:#**Used to display data on interactive maps.

**Maximum Storage Duration**: Persistent**Type**: HTML Local Storage * Google 1Learn more about this provider Some of the data collected by this provider is for the purposes of personalization and measuring advertising effectiveness. The provider may use the IP Addresses for ads measurement and ads personalization. [Cross-domain consent[#BULK_CONSENT_DOMAINS_COUNT#]](https://www.

rtwf. org/rare-disease/rare-disease-grants/#) List of domains your consent applies to: [#BULK_CONSENT_DOMAINS#] [#IABV2_BODY_LEGITIMATE_INTEREST_INTRO#] [#IABV2_BODY_PREFERENCE_INTRO#] [#IABV2_BODY_PURPOSES_INTRO#] [#IABV2_BODY_FEATURES_INTRO#] [#IABV2_BODY_PARTNERS_INTRO#] Please state your consent ID and date when you contact us regarding your consent.

**Do not sell or share my personal information** Deny all Allow custom selection Customize Allow all * [](https://www. linkedin. com/company/rtwcf/ "Opens in a new tab/window") * [](https://www.

youtube. com/@RTWFoundation "Opens in a new tab/window") * [](https://www. instagram.

com/rtw. foundation/ "Opens in a new tab/window") * [](https://www. facebook.

com/profile. php? id=61550052874632 "Opens in a new tab/window") * Community Health Grant Cycle * BioQuest STEM Mentoring Program * Community Health Grant Cycle * BioQuest STEM Mentoring Program Rare disease grants help close critical gaps that often delay progress for ultra-rare diseases Our Rare Disease Grant Cycle is open exclusively to RDAP members.

Grants provide targeted funding to family-led foundations and rare disease organizations working to advance therapeutic development in genetically defined diseases. * Learn About Our 2025 Grant Partners ## **The Spring Grant submission****window is now closed. ** ## **Eligibility requirements:** ### Rare disease grant partnerships are open exclusively to current RDAP members.

A minimum time for engagement/Advising membership will be required to be eligible for a grant. Apply to become a RDAP member here. RDAP members are welcome to submit grant proposals for a tiered system of small, medium, and large grants.

Grants will be shepherded by the Advisors to direct optimal partners to their designated size. Small grants will go through a shorter, less rigorous review process.

Medium grants will require an attached research proposal with timeline, budget, but have a lower score threshold for approval than the Large grants Large grants will have the strictest review process and will require all elements of the small and medium grants with an additional emphasis on budget expenses.

RDAP Grant Stages of Progress Benchmarks of success for the project Ability to be economical with research partners/vendors/service agreements.

The proposed research plan is well-positioned and appropriately mapped to reach aims in the given timeline Progress made since RTWF-RDAP involvement Specific goals for grant money Research aims, protocols, timelines, cost, experimental design, and methodology ## **Selection criteria:** * RDAP Members who received an invite from the program * PAGs, disease foundations and organizations that have identified a strong research partner * Ultra-rare diseases that are non-commercially viable with a patient population of <5,000 globally ### **Criteria for scoring for Large Grants will also include:** * Ability to be economical with research partners/vendors/service agreements.

Is the budget fully justified for the proposed project? * Is the proposed research plan well-positioned and appropriately mapped to reach aims in the given timeline? * How would this size of grant award make a noticeable impact on the overall goals of the foundation?

* [](https://www. linkedin. com/company/rtwcf/ "Opens in a new tab/window") * [](https://www.

youtube. com/@RTWFoundation "Opens in a new tab/window") * [](https://www. instagram.

com/rtw. foundation/ "Opens in a new tab/window") * [](https://www. facebook.

com/profile. php? id=61550052874632 "Opens in a new tab/window") 2026 Community Health Grant Cycle * ## 2026 Community Health Grant Cycle Community Health Grant Cycle

Eligibility Requirements

Rare disease patient organizations that are current members of the Rare Disease Advocacy Partners (RDAP). A minimum time for engagement/Advising membership is required.

Application Resources

Apply Now

Frequently Asked Questions

Who can apply for Rare Disease Grant Cycle?

According to the current listing, eligibility includes: Rare disease patient organizations that are current members of the Rare Disease Advocacy Partners (RDAP). A minimum time for engagement/Advising membership is required. Confirm the full requirements in the official notice before applying.

How much funding does Rare Disease Grant Cycle offer?

The current listing shows tiered system: <$25K (small), $25K - $75K (medium), <$100K (large). Verify award ceilings, matching requirements, and allowable costs in the official notice.

Who funds Rare Disease Grant Cycle?

Rare Disease Grant Cycle is funded by RTW Charitable Foundation. Verify program details on the funder's official page before applying.

Is Rare Disease Grant Cycle available nationwide?

Yes — this listing is flagged as national in scope, so applicants across the U.S. may apply, subject to the sponsor's other eligibility criteria.

How do I apply for Rare Disease Grant Cycle?

Applications go through the funder's official portal — the Apply Now link on this page goes there directly.

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ActiveRTW Charitable Foundation · 2026

Rare Disease Grant Cycle

Quick Facts

Agency: RTW Charitable Foundation
Funding: Tiered system: <$25K (small), $25K - $75K (medium), <$100K (large)
Deadline: Check Source
Status: Active
Eligibility: Rare disease patient organizations that are current members of the Rare Disease Advocacy Partners (RDAP). A minimum time for engagement/Advising membership is required.
Grant Type: Research
Geographic Scope: National