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Find similar grantsResearch Grant Program (Rare Diseases) is sponsored by National Organization for Rare Disorders (NORD). This opportunity supports mission-aligned projects and measurable outcomes.
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Research Grant Program | NORD IAMRARE® Program Powered by NORD Frequently Asked Questions Data Standards for Rare Disease Continuing Medical Education (CME) IAMRARE® Program Powered by NORD Frequently Asked Questions Data Standards for Rare Disease Continuing Medical Education (CME) NORD Rare Disease Grant Program NORD Research Grants provide seed grants to academic scientists for translational or clinical studies that further development of potential new diagnostics or treatments of rare diseases.
The grants are competitive and international. Studies funded with the seed grants provide preliminary data on drugs, devices, or medical foods that researchers may then use to attract funding from government or industry sponsors to pursue further clinical studies. In at least 2 cases, these grants have resulted ultimately in FDA-approved treatments for patients.
Awards are based solely on scientific merit, as determined by the NORD Medical Advisory Committee, rare disease medical experts who generously donate their time to help NORD provide this program on behalf of the rare disease patient community. Our grand selection process follows those of the National Institutes of Health (NIH) and is unbiased and independent. Read the full research grant policy.
Grants are funded largely by donors and patient advocacy organizations. In many cases, they are the only source of funding for the study of specific rare diseases. NORD will accept gifts restricted to research grant funds in support of a specific rare disease (or group of related rare diseases) or to NORD’s general research grant fund.
Because medical research is costly, a minimum amount of $62,500 U.S. is required to fund one grant in support of a specific rare disease (or group of related rare diseases). Donors interested in establishing a research grant fund with a donation below the threshold of $62,500 will be required to sign a pledge agreement.
If gifts less than $62,500 are received but no pledge agreement is signed, donated funds will be applied to related rare disease research priorities funds. If no related rare disease research funds are identified, donated funds will be allocated to NORD’s general research grant fund. Interested donors must contact [email protected] to discuss restricted donations prior to providing funding.
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According to the current listing, eligibility includes: Researchers, universities, hospitals, and medical institutions conducting studies on rare diseases. Confirm the full requirements in the official notice before applying.
The current listing shows minimum $62,500 for a specific rare disease. Verify award ceilings, matching requirements, and allowable costs in the official notice.
Research Grant Program (Rare Diseases) is funded by National Organization for Rare Disorders (NORD). Verify program details on the funder's official page before applying.
Start from the official opportunity page linked in this listing — it carries the sponsor's submission instructions.
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