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Find similar grantsSpinal Muscular Atrophy Health Equity Fund (TotalAssist) is sponsored by TotalAssist. This fund helps eligible patients with Spinal Muscular Atrophy pay for out-of-pocket healthcare costs, including medication copays, coinsurance, deductibles, and health insurance premiums.
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Or search similar grants →Extracted from the official opportunity page/RFP to help you evaluate fit faster.
* View all funds & search * Get notified when your fund opens * Nonprofit patient partners * How TotalAssist helps you * How financial assistance works * What are health equity funds?
* Getting started after approval * Información en español sobre TotalAssist * Approval & getting started * For patients, pharmacies, and providers * Nonprofit Patient Partner Portal * Quick check: application and claim status * Other patient resources * Patient Advocate Foundation * How to support TotalAssist * About Patient Advocate Foundation * How to support TotalAssist [](https://totalassist. org/?
s=) * * Search by disease or medication name to find your fund and check eligibility * Apply by phone, Mon – Fri, 8:30am – 5:30pm ET: 866-512-3861 * Get notified when funds open * * #### Ayuda en español * Solicita por teléfono: llame al 866-512-3861, presione 2, para solicitarlo, de lunes a viernes, de 8:30am – 5:30pm, hora del Este.
* Obtenga más información * * #### Apply online 24/7 Create a new account or login to your TotalAssist portal account * Patients and caregivers * Nonprofit patient partners * * #### After you apply: * I'm approved, what now? * How TotalAssist helps you * * Learn how TotalAssist helps you pay for out-of-pocket healthcare costs * * #### Learn about TotalAssist: * What is financial assistance? * What are health equity funds?
* Cómo funciona TotalAssist * * #### Explore more resources: * Resources beyond TotalAssist * Grants, claims, and portal help * * Find answers to your questions about TotalAssist, applying, claims, your portal, and more * * #### Help center topics Mon–Fri, 8:30am–5:30pm ET Chat live, or call: **866-512-3861** * #### Quick check, no login needed: * Quick check: grants and claims * * #### Create your portal account to apply in minutes * * Portal for patients, pharmacies, and providers * * Nonprofit Patient Partner Portal We are currently experiencing high call volume and increased claim volume.
Call wait times are longer than usual and manual claims processing times may also take longer than expected. We apologize for any inconvenience. Please avoid resubmitting duplicate claims as this may further delay processing.
For faster assistance, use your online portal account our 'Quick Search' tool, live chat, or search help center articles. For non-urgent requests, please submit an inquiry here.
Portal login and quick tools Portal login for nonprofits # Spinal muscular atrophy (SMA) health equity $2,000 guaranteed award | $6,500 maximum award ## Help with healthcare costs for spinal muscular atrophy (health equity) This TotalAssist fund helps you pay for out-of-pocket healthcare costs, including medication copays, coinsurance, and deductibles, health insurance premiums, and other expenses.
Check your eligibility with our quick and easy tools below. If this fund is open, apply today for an instant approval decision and use your grant funding right away. Learn how TotalAssist helps you.
Health Equity Funds offer help to eligible patients living in areas identified as having increased social and financial needs, as well as higher rates of chronic conditions. Eligibility is determined in part by home address zip code. TotalAssist also offers a spinal muscular atrophy fund.
Please note that you cannot receive more than one grant for the same condition. To be eligible for this fund, you must: * Have a confirmed diagnosis and are in treatment for spinal muscular atrophy, or planning to begin treatment in the next 60 days, or have been in treatment in the past 6 months.
This includes active surveillance of a condition * Have **health insurance** that covers your qualifying expenses * Have an income at or less than 500% of the Federal Poverty Level, adjusted for your regional Cost of Living Index (COLI). What is this?
* Be a legal resident and receive treatment in the U.S. or a U.S. territory * Be prescribed a medication or product listed in the approved medications, listed below * Have a home address in a zip code served by a Health Equity Fund, which supports eligible patients living in designated social vulnerability counties ## Quick eligibility checker Answer a few short questions to find out if you might be eligible for this fund.
No documents or personal information needed Please select a fund to continue. Please confirm you are in treatment for this condition by a healthcare provider in the U.S. or U.S. territories. Find your medication or treatment: Please select a medication to continue.
Do you have [health insurance; government-insured health coverage] that covers the medication or treatment? If you do not have this coverage, you might not be eligible for this fund. State or territory where you reside: Please select your state.
Please enter a valid 5-digit ZIP code. Estimated current annual income: $ Please enter your estimated annual income. ## Not sure if you’re eligible for TotalAssist?
We encourage you to check your eligibility or complete pre-screening to confirm. There’s no risk and applying online takes less than 15 minutes. Start your application online or by phone and complete the pre-screening questions to confirm eligibility.
Patient Advocate Foundation covers all the prescription medications for each diagnosis, including generic or bioequivalent drugs, that meet any of the following criteria: FDA-approved, listed in official compendia, and/or listed in published evidence-based or clinical guidelines.
* Betamethasone Acetate-Sod Phos (Betamethasone Ace,Sod Phos/Wtr) * Betamethasone Sod Phos-Acetate (Betamethasone Acetate,Sod Phos) * Betamethasone Sod Phos-Water (Betamethasone Sod Phosph-Water) * Bsp 0820 (Betamethasone Acetate,Sod Phos) * Celestone (Betamethasone Acetate,Sod Phos) * Cortef (Hydrocortisone) * Depo-Medrol (Methylprednisolone Acetate) * Dexabliss (Dexamethasone) * Dexamethasone Acetate (Dexamethasone Ace/Nacl,Iso-Osm) * Dexamethasone Intensol (Dexamethasone) * Dexamethasone Sodium Phosphate * Dexamethasone Sod Phos-Water (Dexamethasone Sodium Phosp/Pf) * Hexatrione (Triamcinolone Hexacetonide) * Hydrocortisone Sod Succinate * Kenalog-10 (Triamcinolone Acetonide) * Kenalog-40 (Triamcinolone Acetonide) * Kenalog-80 (Triamcinolone Acetonide) * Khindivi (Hydrocortisone) * Medrol (Methylprednisolone) * Methylprednisolone Acetate * Methylprednisolone Sodium Succ (Methylprednisolone Sod Succ) * Millipred (Prednisolone) * Millipred Dp (Prednisolone) * Myhibbin (Mycophenolate Mofetil) * Orapred Odt (Prednisolone Sodium Phosphate) * Pediapred (Prednisolone Sodium Phosphate) * Prednisolone Sodium Phos Odt (Prednisolone Sodium Phosphate) * Prednisolone Sodium Phosphate * Prednisone Intensol (Prednisone) * Solu-Cortef (Hydrocortisone Sodium Succ/Pf) * Solu-Medrol (Methylprednisolone Sod Succ/Pf) * Spinraza (Nusinersen Sodium/Pf) * Taperdex (Dexamethasone) * Triamcinolone Acetonide * Veripred 20 (Prednisolone Sodium Phosphate) * Zolgensma (Onasemnogene Abeparvovec-Xioi) Spinal muscular atrophy (SMA) is a group of hereditary diseases that progressively destroy motor neurons that control essential muscle activity such as speaking, walking, breathing and swallowing.
It is a rare disease that affects the nervous system. Subtypes include SMA type 0, SMA type I (Werdnig-Hoffmann disease), SMA type II (Dubowitz disease), SMA type III (Kugelberg-Welander disease), and SMA type IV. If your fund is open, apply online 24/7, or call 866-512-3861, Monday – Friday, 8:30am – 5:30pm ET.
Answer pre-screening questions to confirm eligibility. Have your income, medication, diagnosis, and insurance information ready. Complete the application and get an instant approval decision.
You can begin using your grant right away. * Patients and caregivers Find answers to your questions about applying, claims, grant use, and your portal account. You can use your TotalAssist grant award to help pay for out-of-pocket healthcare expenses.
Call us at 866-512-3861 to apply by phone, Monday through Friday, 8:30am - 5:30pm ET. Connect with other organizations and resources for support. * Muscular Dystrophy Association ## Explore resources beyond TotalAssist Patient Advocate Foundation knows that patients may need support, information, and resources beyond TotalAssist.
This can include services like case management, help with living expenses, and much more. Search our National Financial Resources Directory, find community specific resources, and explore our patient education library. Helping patients access the care they need.
TotalAssist is the charitable patient assistance program of the Patient Advocate Foundation—connecting people with life-threatening, chronic, and rare diseases with financial assistance for their out-of-pocket healthcare costs. 501(c)(3) nonprofit · Established 1996 Call us for help with your application or claims, Monday - Friday, 8:30am - 5:30pm ET Llame si necesita ayuda con su solicitud o reclamo, de lunes a viernes de 8:30 a. m.
a 5:30 p. m. , hora del este.
Para español, presione 2. * Find your TotalAssist fund * Get open fund notifications * Check claims or grant balance
According to the current listing, eligibility includes: Individuals with a confirmed diagnosis of Spinal Muscular Atrophy, who are in treatment or planning to begin treatment, have health insurance, and have an income at or less than 500% of the Federal Poverty Level (adjust…. Confirm the full requirements in the official notice before applying.
The current listing shows not specified (covers out-of-pocket healthcare costs up to 500% FPL). Verify award ceilings, matching requirements, and allowable costs in the official notice.
Spinal Muscular Atrophy Health Equity Fund (TotalAssist) is funded by TotalAssist. Verify program details on the funder's official page before applying.
Start from the official opportunity page linked in this listing — it carries the sponsor's submission instructions.