Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults

Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults is sponsored by Centers for Disease Control and Prevention - National Center on Birth Defects and Developmental Disabilities (NCBDDD). This program supports the development of population-based surveillance systems and data linkages for individuals with congenital heart defects (CHDs) across all ages.

A **. gov** website belongs to an official government organization in the United States.

* How to Apply for Grants * **Applicant Resources** * Adobe Software Compatibility * Submitting UTF-8 Special Characters * Encountering Error Messages * Grantor Standard Language * Submitting UTF-8 Special Characters * **Applicant System-To-System** * Reference Implementation * **Grantor System-To-System** * Reference Implementation * SF-424 Individual Family * SF-424 Mandatory Family * SF-424 Short Organization Family * Post-Award Reporting Forms * Country and State Lists Updates * **Manage Subscriptions** * Program Management Office * Grants.

gov Maintenance Calendar Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults Department of Health and Human Services Centers for Disease Control - NCBDDD Document Type:Grants Notice Funding Opportunity Number:CDC-RFA-DD-24-0051 Funding Opportunity Title:Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults Opportunity Category:Discretionary Opportunity Category Explanation: Funding Instrument Type:Cooperative Agreement Category of Funding Activity:Health Expected Number of Awards:8 Assistance Listings:93.

073 -- Birth Defects and Developmental Disabilities - Prevention and Surveillance Cost Sharing or Matching Requirement:No Last Updated Date:May 02, 2024 Original Closing Date for Applications:May 14, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.

Current Closing Date for Applications:May 14, 2024 Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.

Archive Date:Jun 13, 2024 Estimated Total Program Funding:$ 3,100,000 Eligible Applicants:Special district governments Public housing authorities/Indian housing authorities Private institutions of higher education Others (see text field entitled "Additional Information on Eligibility" for clarification) Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility" Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Public and State controlled institutions of higher education Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Native American tribal governments (Federally recognized) Native American tribal organizations (other than Federally recognized tribal governments) City or township governments Independent school districts Additional Information on Eligibility:Organizations will determine eligibility per Section 399V-2 of the Public Health Service Act (42 U.S.C.

280g-13) ## Additional Information Agency Name:Centers for Disease Control - NCBDDD Description:Synopsis: NOFO # DD24-0051 solicits non-research, cooperative agreement applications to conduct population-based surveillance of congenital heart defects (CHD) to describe health outcomes including health equity, with the goal of identifying opportunities to improve the health of all people living with CHD.

This project will involve a required component (A) and an optional component (B). The population included in this surveillance activity can be an entire state or a region within a state.

Individuals with CHD should be identified through existing data sources including the jurisdiction birth defects surveillance system, electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients.

Background: Congenital heart defects (CHD) affect about 1% of all births in the United States, and are a leading cause of birth defect-associated infant mortality, morbidity, and healthcare costs. Improvements in early detection and treatment of CHD and consequently in survival have resulted in many people, including those affected by a severe CHD, living into adolescence and adulthood.

An estimated two million persons in the U.S. are living with a CHD, including over one million adults; about 12% of these affected adults have a severe CHD. Most current efforts to conduct population-based surveillance of CHD have focused on monitoring newborns.

However, little data exist on the descriptive epidemiology of CHD beyond early childhood in the U.S. Despite the public health burden, the lack of population-based surveillance precludes reliable data on people with CHD, their survival, healthcare utilization, and characteristics associated with long-term outcomes.

Through this surveillance activity, these data will be assessed, enabling and informing efforts to improve the health and well-being of people with CHD.

Objectives: Component A objectives include: (1) assess survival, comorbidities, healthcare utilization during the period 2021-2023, and characteristics associated with long-term outcomes among people with CHD; (2) assess health equity among people with CHD; (3) examine state and national healthcare policies that have an impact on people with CHD; (4) examine COVID-19 and related data such as health care utilization during the pandemic among people with CHD; and (5) work with local/state partners to use site-specific CHD data.

Component B objectives include: (1) develop and refine a machine learning algorithm for the surveillance data collected through Component A; and (2) apply this machine learning algorithm to data collected from all recipients funded through Component A. Link to Additional Information:[](https://www. grants.

gov/search-results-detail/350136) Grantor Contact Information:If you have difficulty accessing the full announcement electronically, please contact: #### Health & Human Services * Frequently Asked Questions ## Your session will expire in 3 minutes. To continue working, click on the "OK" button below. This is being done to protect your privacy.

Unsaved changes will be lost.